A World of Difference

Sprout and I went on a little field trip this week. We’ve been dying to get her into Nemours Children’s Hospital for well over a year now, but the gears grind slowly. First I thought our insurance wasn’t accepted there at all because that’s what I’d been told. Then I found out it could potentiallyContinue reading “A World of Difference”

A wheelchair = liberation

Having kids with physical limitations is illuminating. After a battle with insurance, they finally approved an adorable little yellow smiley face wheelchair for Sunny. I pushed for it because there are so many things we can’t do with her now: we can’t go to the mall, or the State Fair, or the little village festivalContinue reading “A wheelchair = liberation”

Persistence Pays Off… Maybe? 🤞🏻

After my last blog post, I wrote a frustrated Facebook post on a foster care group page about the misery of this situation with being unable to get the girls medical care they desperately need. I got a lot of “don’t give up, you have to do something” comments which didn’t accomplish anything but annoyContinue reading “Persistence Pays Off… Maybe? 🤞🏻”

Working hard, but not Working

Work is where it’s at… or is it? I’ve worked since I was about 15. I first started as a receptionist at my family’s church, plus some babysitting gigs. Then I switched to working at the rare books department of the nearby university. I worked there summers for years, including while I was in college.Continue reading “Working hard, but not Working”

Summer Heat and Fun… with a Side of Fatigue

So far this summer I have taken one or both girls to: A carnival with rides and fireworks Swimming at a local lake Swimming at the local pool Wading in a stream at a nearby park looking for crayfish On a boat ride along the Erie Canal To the MOST (the local kids’ science museum)Continue reading “Summer Heat and Fun… with a Side of Fatigue”

Could it be? Possibly? Maybe?

I woke up at 2:20 am, wide awake. You know the feeling. Thoughts about random nonsense marched through my brain like ants at my sleep picnic. I eventually got myself up and came downstairs for some guilty pleasure: HGTV. I shared the watching with a house centipede walking around my ceiling above me, keeping meContinue reading “Could it be? Possibly? Maybe?”

Adding up the Fun Diagnoses

Yesterday I saw my gastroenterologist for the first time since he did my colonoscopy last August. It was an interesting appointment. It’s been an interesting ride at his practice. It’s been a series of issues in his office that has kept me from seeing the actual gastroenterologist for so long. His office cancelled and rescheduledContinue reading “Adding up the Fun Diagnoses”