A while back I posted about my health challenges. (See here and here if you aren’t caught up). I’ve been placed on Stelara for my ulcerative colitis (“UC”), which is an immunosuppressant that is aimed at UC and at psoriatic arthritis. It’s helping with the UC though is not putting me in remission. Regardless, I’llContinue reading “Health Update Time”
Tag Archives: self care
Self care isn’t just a cliché
My therapist introduced me to Silk + Sonder journals recently. They’re monthly journals, meaning they’re designed for people like me who lose interest in old things and get excited about new. Just as I’m losing interest in last month’s journal the next one arrives, fresh with a new theme and clean pages of possibility. ThereContinue reading “Self care isn’t just a cliché”
What if curiosity healed the cat?
We dropped Sunny off with her relative on Tuesday. It was uneventful. She refused to say goodbye which made it extra hard. Even though I know saying goodbye is really hard for a lot of foster kids – they’ve had to say some really goddamn hard goodbyes in their lives – it still felt yuckyContinue reading “What if curiosity healed the cat?”
Looking for Redemption
I have spent months wallowing in frustration. Frustration with Sunny’s defiance, her meanness, her cruelty toward her sister, her disregard of others in the community life of our family. Frustration has led to anger. I recognize that it is ridiculous that I am angry with a broken ten-year-old for being broken. But knowing and changingContinue reading “Looking for Redemption”
The Winding Down
I took Sunny to the pediatrician this morning. She was just due for a routine checkup, but I of course informed them that she is being discharged from our county’s care and moved to a relative a few hours away. They made it a discharge appointment, where they gave her shots a little ahead ofContinue reading “The Winding Down”
Feeling at Home
Seth and I have been struggling mightily with our household lately. Sunny knows there are only a few weeks before she goes home, and she’s ramped up her behaviors significantly. Intellectually I get that she’s pushing us and her sister away so that leaving is easier. I get that she’s only 10, and is struggling.Continue reading “Feeling at Home”
It’s Mother’s Day, FWIW
It’s no secret that I’m not a fan of Mother’s Day. I always struggled with it as a younger adult because I didn’t have kids, didn’t want biological kids, and felt inherently that Mother’s Day was the world’s way to point out that I wasn’t the “ideal woman.” Ideal women prioritize reproduction. Once I becameContinue reading “It’s Mother’s Day, FWIW”
Disabled, officially. For now.
I’ve written before about my health struggles (see here). In sum, I have psoriatic arthritis and ulcerative colitis – both of which are autoimmune diseases – and fibromyalgia, which is an issue with the pain system of the body. The good news is I’ve been awarded social security disability, for now. It’s been a twoContinue reading “Disabled, officially. For now.”
Acting up in public
Last weekend my husband was working, but I fearlessly plowed ahead and took Sunny and Sprout to the Finger Lakes Chapter of Little People of America’s holiday party. Let me start this by praising this organization. I’ve written about them before regarding a baseball game we took the girls to during the summer. Being surroundedContinue reading “Acting up in public”
The joys of chronic illness
How it’s been going: As most of you know, I collect autoimmune diseases. I’ve been diagnosed with seronegative rheumatoid arthritis, psoriatic arthritis, and ulcerative colitis. Who knows which of those diagnoses is accurate, but the upshot is that my immune system likes to run amok and damage healthy tissues. The result is pain, stiff swollenContinue reading “The joys of chronic illness”
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