disabilities

Adoption. Is. Trauma.

I got a note from Sprout’s teacher on Friday saying Sprout had a rough week. She refused to do her work unless an adult helped her (she is in a 12:1:1 classroom so that help is thankfully available). She was sometimes uncooperative. And the work she did do was not her best. Let me startContinue reading “Adoption. Is. Trauma.”

Health Update Time

A while back I posted about my health challenges. (See here and here if you aren’t caught up). I’ve been placed on Stelara for my ulcerative colitis (“UC”), which is an immunosuppressant that is aimed at UC and at psoriatic arthritis. It’s helping with the UC though is not putting me in remission. Regardless, I’llContinue reading “Health Update Time”

Travels with Sprout

Sprout and I have spent the last week adventuring. Sunday morning I attended the memorial service for my beloved friend, bonus father figure, Buddhist Monk, and author Terrence Keenan. It was at Hoenji, which is the Zen Center of Syracuse. After the service was over my husband and Sprout joined the gathering for lunch, andContinue reading “Travels with Sprout”

Self care isn’t just a cliché

My therapist introduced me to Silk + Sonder journals recently. They’re monthly journals, meaning they’re designed for people like me who lose interest in old things and get excited about new. Just as I’m losing interest in last month’s journal the next one arrives, fresh with a new theme and clean pages of possibility. ThereContinue reading “Self care isn’t just a cliché”

Disabled, officially. For now.

I’ve written before about my health struggles (see here). In sum, I have psoriatic arthritis and ulcerative colitis – both of which are autoimmune diseases – and fibromyalgia, which is an issue with the pain system of the body. The good news is I’ve been awarded social security disability, for now. It’s been a twoContinue reading “Disabled, officially. For now.”

The Power a Good Foster Parent Has

This week I shot an email to Sunny’s attorney and asked her to give me a call when she got the chance. She did so promptly, and I told her in no uncertain terms that Sunny is struggling emotionally here more and more as time passes, and that both her therapist and I think it’sContinue reading “The Power a Good Foster Parent Has”

Dealing with Uncertainty

Foster care is nothing if not filled with uncertainty. We have 10-year-old Sunny with us still. She’s been here 519 days counting today. She says she still wants to go home, but my suspicion is that she would have a very hard time transitioning back to her old style of family life. Her family isContinue reading “Dealing with Uncertainty”

Acting up in public

Last weekend my husband was working, but I fearlessly plowed ahead and took Sunny and Sprout to the Finger Lakes Chapter of Little People of America’s holiday party. Let me start this by praising this organization. I’ve written about them before regarding a baseball game we took the girls to during the summer. Being surroundedContinue reading “Acting up in public”

The joys of chronic illness

How it’s been going: As most of you know, I collect autoimmune diseases. I’ve been diagnosed with seronegative rheumatoid arthritis, psoriatic arthritis, and ulcerative colitis. Who knows which of those diagnoses is accurate, but the upshot is that my immune system likes to run amok and damage healthy tissues. The result is pain, stiff swollenContinue reading “The joys of chronic illness”

Waiting Game

I suck at being patient. Just ask my long suffering husband! Court was more than three weeks ago. The possibility of the girls’ third sister moving here at least temporarily was discussed at length at court. The judge didn’t order it, but told the agency they had to make certain medical things happen for theContinue reading “Waiting Game”